'Rare' diseases impact the lives of a billion people. “By fixing rare diseases in the health system, you actually fix the health system itself,” explains Alexandra Heumber, CEO, Rare Diseases International.
"People with rare diseases are often “invisible” to their own healthcare system", says Soraya Bekkali of Alexion, AstraZeneca Rare Disease. She tells the World Economic Forum’s #RadioDavos podcast how we can change that.
“It's something that can impact any family at any time,” shares Will Greene of the Foundation for Prader-Willi Research of his own life-changing experience of rare disease.
Listen here to the latest episode of Radio Davos:
https://wef.ch/4aU2z06